Alzheimer’s Society Comment On BBC’s Panorama

BBC’s Panorama broadcast a report on Monday 23rd April, on the abuse of a person with Dementia in a care home.

The report explained how a concerned daughter hid a camera in her mothers room, after fears her mother was being mistreated. The footage caught on camera, shows a member of staff striking the Alzheimer’s patient.

The staff member has since been sentenced to 18 months in prison.

Click on the link below to read the full article.

http://www.careindustrynews.co.uk/2012/04/alzheimers-society-comment-on-bbcs-panorama/?goback=.gde_3726085_member_109717950

Rioters destroy Age Concern ambulance

The riots have depleted an ambulance service that takes dementia patients to day centres after a gang torched one vehicle and badly scorched another.

The damage will cost Age Concern Leicester Shire and Rutland up to £45,000, which it may not be able to raise.

The gang threw a petrol bomb at one of two 17-seat specially-converted vehicles that were among a fleet of 10 vans of varying sizes belonging to the charity.

Chief executive Tony Donovan said users were anxious, confused and worried for their safety with some not wanting to come into day centres today, fearing they had been the gang’s target.

Even if it does raise enough for a converted van, it will take up to three months for the new vehicle to be ready.

Most of the clients are in the critical care banding and find change difficult, said Donovan. Many are so frail that, without the service, they would be in residential care.

“We are all devastated by this mindless act,” he said. “Our clients have taken it all personally because they are used to a particular vehicle. It’s created a lot of anxiety among them.

“We’ve had to restructure everything so clients have been coming in later. The transport manager and care staff are wondering how we will cope with it. We pick up our clients between 9am and 10am and, with their mental health issues, we have to keep to a routine otherwise they become anxious.”

The charity has been given a short-term loan of two smaller council vehicles, bringing its fleet back up to 10, but Donovan said wheelchair fit was tighter, while their smaller size forced drivers to make costly extra journeys. He was also concerned at the long-term cost implications caused by higher insurance premiums, which may force the charity to re-examine services to lower-dependency people.

Donovan praised community support since the attack. Local dairy Kirby West pledged £20,000, while a landlady has pledged £200 and was encouraging her customers to put in money as well.

Age UK said other local charities were affected by the violence. On Monday, Age UK Croydon’s offices in south London were ransacked, causing £20,000 damage.

Age UK Croydon’s chief executive Stuart Routledge said the damage was so bad the charity has had to cancel nail clinics and its handyman service, both of which are run out of the office.

“People are shocked and traumatised by what happened. Unfortunately we had one member of staff on site as this was happening and we had to guide her away from the office as it was taking place. Having said that staff and volunteers have been supportive and people have been coming in and offering to help.

“Older people have been supportive of us because we’ve had to cancel services but they have been very bewildered by what’s going on.”

As reported yesterday, the riots have prevented approved mental health professionals carrying out assessments under the Mental Health Act 1983 because police were not available to accompany them.

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Article source: http://www.communitycare.co.uk/Articles/2011/08/12/117293/rioters-destroy-age-concern-ambulance.html

Personalisation: Are personal budgets improving outcomes?

Research published this year found personal budgets were improving outcomes for users. Consultant Colin Slasberg (pictured left) claims the positive effects are not the work of personal budgets but of funding levels. In a response, research author Chris Hatton (right) says his findings are robust

COLIN SLASBERG, social care consultant

The National Personal Budget Survey, published in June, is being used by sector leaders as proof that personal budgets are working.

A majority of the 2,000 respondents report better outcomes in relation to factors such as safety, independence and dignity. However, more than 80% had a direct payment and they, not the people on council-managed personal budgets, are the ones who report the better outcomes. The message could not be clearer – direct payments work, council-managed budgets do not.

The kneejerk reaction is to say everyone should have a direct payment. However, the improved outcomes look suspiciously like the benefits that come with higher levels of funding. In 2009-10, 106,655 people had a direct payment in England and spent £783m between them, an average of £7,300 each. The other 1.35m service users used £5.25bn of community services, which is £3,900 each. This difference is not explained by complexity of need. There are people with low-value direct payments as well as high, but it is likely that their funding will better match their needs than if they did not have a direct payment.

Also, a study by the Office of Public Management of people with a direct payment in Essex shows they – or their representatives – tend to be highly articulate people able to negotiate their way through powerful interests, including council officers. It is likely that this personal powerfulness not only accounts for their enthusiasm to act as their own commissioner, but also explains why they have higher funding than most.

Even if all people were given a direct payment, the better outcomes would not be replicated, not least because higher funding for recipients would not be affordable on a large scale. If all older people alone had the same level of funding as those with a direct payment, it would require a further £1.6bn.

So, if council-managed personal budgets make no contribution and direct payments will benefit only a minority, how can personalisation be made a reality for all? The key lies not in replacing the prevailing system, but transforming it. Action on three fronts is needed.

The first is to create a framework that faces up to the serious mis-match between funding for individuals and their needs. This requires a complete overhaul of Fair Access to Care Services.

Scarce resources should be allocated according to universal human needs, and we should be transparent about needs that we cannot fund. This will invigorate the political process, offering a surer route for funding to get closer to need than the current reliance on the judicial system.

The second is to transform assessment and support planning. Most people do not want to become their own commissioner. They just need practitioners to work differently, to listen to them and be allowed to respond with honesty and creativity. The above action on FACS will open the door to allow this to happen. Councils will also need to free up their resource base from pre-purchased services so that cash is the currency of support planning.

Third is to recognise that most people will continue to look to mainstream services. Councils need to stop thinking that an army of people with personal budgets will change the market. They must learn how to work with providers to develop their services so that they are authentically personalised – a huge challenge.

Social care is being led by people holding on to a false prospectus – that there is some magic within the personal budget process whereby better outcomes will come without cost. Time has been lost in facing up to the real challenges while all the focus has been on delivering the failed personal budget strategy. There is good research about what works and it is time to create the conditions within which best practice can flourish.

Colin Slasberg is a social care consultant and a former social worker and council manager

 

CHRIS HATTON, research author

Plenty of evidence exists that social care services tend to be directed towards those with the skills, tenacity and resources to negotiate byzantine systems. However, this is not a specific issue concerning direct payments – it is a pervasive one found throughout social care. Slasberg’s conclusion here seems somewhat despairing – rather than trying to encourage “personal powerfulness” more widely among users, social services should retain all the power because to “give” power to some and not others is unfair.

He argues that because most personal budget holders in the National Personal Budgets Survey were using direct payments, and because direct payments are funded at a higher level than council-managed personal budgets, the positive impact of personal budgets is entirely a function of the increased resources received by holders of direct payments.

This is not the case. I did further analysis of the survey database and found costs accounted for, at most, 7% of the variance in people’s reports of impact.

The weekly amount of the personal budget was important for only one of the 14 outcome indicators. Other factors were more important in predicting positive outcomes, most commonly: the person having help to plan their personal budget (seven outcome indicators); the person’s views being considered in their personal budget plan (five outcome indicators); the council making it easy for the person to plan and manage their support (five outcome indicators); and the council making it easy for the person to tell the council what they think or complain (five outcome indicators). These modest links between costs and outcomes are no surprise, as social care research shows such relationships are weak to non-existent.

It is unclear to me why Slasberg’s three-part solution would be an improvement.

Being honest about unmet need so that scarce resources can be allocated in a transparent way is laudable. But I am unclear why such a process is in principled opposition to a personal budget strategy, which should have resource allocation processes that are far more transparent than traditional methods for allocating social care?

I am also puzzled why he thinks changing the assessment and support planning process so practitioners listen to service users, allow them to work with honesty and creatively and with “cash as the currency of support planning” is in opposition to personal budget support planning, which aims to do just this.

It also seems rather naive, and it is odd for Slasberg to accuse proponents of personal budgets to be relying on “magic” when he offers no mechanisms for how this change is to occur. Given that social care policy has been promoting similar aims at least since the NHS and Community Care Act 1990 with limited and patchy success, even in good financial times, it is hard to see how such a magical transformation in social services culture will occur in times of severe resource constraints without the fundamental shift of power required as part of the personal budget approach.

The final part of his solution is that “the majority of people will continue to look to mainstream services” and councils need to work with providers to deliver personalised services. Again, I fail to see how this is in opposition to personal budget strategies, where the person is free to continue to use mainstream services and councils are working with providers and others to shape the market for social care users.

It puzzles me why his hostility is directed towards personal budgets, when his concerns (which I share) about inequality, lack of transparency and accountability, bureaucracy and unresponsive services have been pervasive concerns about traditional social services cultures and practices long before personal budgets came on the scene.

Professor Chris Hatton from Lancaster University is the lead author and analyst of the National Personal Budget Survey for Service Users and Carers

Survey in full

Related articles

State of personalisation 2011

Expert guide to personalisation

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This article is published in the 6 October 2011 edition of Community Care under the headline “Do personal budgets work?”

Article source: http://www.communitycare.co.uk/Articles/2011/09/30/117526/personalisation-are-personal-budgets-improving-outcomes.html

What service users want from social workers

What do service users want from social workers? Social work academic and mental health service user Peter Beresford says that research points to four crucial qualities. He will be speaking about the future of adult social work at Community Care Live on 16 May.

The crucial importance of the social work relationship

Above all else the evidence highlights that service users value the relationship that they have with social workers. It is seen as the crucial starting point for getting help and support on equal terms; for working with rather than on people. Service users talk of relationships based on warmth, empathy reliability and respect. It is the antithesis of form-filling approaches to assessment, which reduce the contact between service users and practitioners to a formulaic and bureaucratic contact.

It is not surprising that service users sometimes talk of social work practitioners as ‘friends’, not because they confuse the professional relationship they have with them with an informal one, but because they associate it with all the best qualities they hope for from a trusted friend.

Good social work is social

Positive social work practice with adults, as its name makes explicit, comes from a social perspective. It is based on seeing people’s lives in the round, not just their problems, not just what they can’t do, but also what they can do.

Service users talk about the strengths of social workers who see them in their community, among their families and friends and who don’t just interpret their problems as their fault – as a matter of individual deficiency or pathology to be blamed – but rather take account of the broader barriers and difficulties they may face.

Offering practical as well as emotional support

Service users particularly value the fact that social workers can offer both practical and emotional support. They bring the qualities of a counsellor alongside the practical skills of a hands-on worker. They know how to negotiate the housing and benefits system, fill in forms and sort out practical problems from debt to infestation. But they also offer ‘talking therapy’ and a shoulder to cry on, and don’t treat psychological and emotional difficulties in isolation from people’s real worlds.

However, the modern history of the helping professions has been to separate practical and emotional support, creating assistant roles to handle more mundane practical tasks. What service users highlight though is that through such mundane tasks they can build the trust and confidence to confide in social workers and be in a position to gain emotional strength from their support.

Listening

Service users frequently report how much they value social workers ‘listening’ to them. This quality or skill of being able to listen is the basis for much else that service users value. It makes them feel that they are valued, that their viewpoint has merit. It is the starting point for an approach to practice based on ‘co-production’ – the social worker working with the service user to find out what will help – the basis for all good practice.

When they talk of social workers listening, service users also emphasise the sense of not being judged. The social worker is both well informed and anti-discriminatory. Listening is much more than a passive quality. It is the starting point for an empowering approach to practice.

Delivering what service users want

The rise of managerialism and the adoption of care management have undoubtedly created barriers in the way of social workers delivering these qualities in social work with adults in local authorities. But these aren’t inherent problems for statutory social work. After all, local authorities have a strong tradition of encouraging community work, which has supported local neighbourhoods, citizens and service users, and fostered empowerment and anti-discrimination.

This approach sometimes means taking their side against their employers and other state agencies. Despite the challenges this tension poses, this community-oriented tradition needs to be rediscovered and social workers supported to feel that their first loyalty as professionals must always be to the people they work with, not those they work for.

 

Peter Beresford is a long-term mental health service user, professor of social policy at Brunel University and chair of service user network Shaping Our Lives. This piece draws on research findings from Palliative Care, Social Work and Service Users; Making life possible (2007, Jessica Kingsley Publishers) and Supporting people: Towards a person-centred approach (2011, Policy Press) by Beresford and other authors.

Community Care Live

Register for your free place at this year’s Community Care Live on 16 and 17 May to catch up on the latest practice developments in social work and social care and network with fellow professionals.

Article source: http://www.communitycare.co.uk/Articles/2012/04/27/118171/what-service-users-want-from-social-workers.html

Home care services face unannounced inspections

The Care Quality Commission this week started its programme of unannounced inspections of 250 home care providers, which are designed to garner much more information from users than previous probes.

Agencies will be inspected at their headquarters without notice, unlike previous inspections of home care providers, which have been announced at short-notice, while there will also be more feedback from users.

The CQC will also be contacting local authorities for contacts of service users whom they fund as well as asking agencies for a random sample of their clients. The service users will either be sent questionnaires, telephoned by ‘experts by experience’ – service users who are helping conduct the inspections - or, if they consent, visited by inspectors in their own homes, including during care visits.

These methods will be coupled with checks on providers’ care plans, records and other processes, and the CQC said that it hoped to get a more rounded assessment of domiciliary providers than it had previously been able to secure. The 250 inspections will run alongside the CQC’s programme of 6,000 planned visits to home care providers this year and will also inform a thematic report on the sector.

The programme follows widespread concerns about the state of home care, after an Equality and Human Rights Commission review found widespread breaches of service users’ human rights and a United Kingdom Homecare Association survey found council cuts were leading to undignified care.

The UKHCA said it welcomed the CQC’s approach. “Really listening to the experiences of people who use homecare services is essential to effective and balanced regulation,” said chief executive Bridget Warr.

Image: Getty

Related articles

CQC to probe standards of home care

Article source: http://www.communitycare.co.uk/Articles/2012/04/26/118169/home-care-services-face-unannounced-inspections.html

Essex Coalition for Disabled People (ECDP) capturing view and experiences

ECDP has been asked by Essex County Council to find out how to best capture the views and experiences of people of the health and social care systems.

For more information and dates to attend, please call 01245 214023 or email Faye on fsavage@ecdp.co.uk

Training social workers to spot telecare needs ‘will cut costs’

Older woman in chair

Councils can generate big savings from telecare so long as they improve training for social workers in identifying appropriate options for clients during assessments, says a study.

Using telecare could generate an estimated £3m to £7.8m a year for the average council through reduced home care costs and delaying entry to residential care, said the report from assessment systems provider FACE Recording and Measurement Systems, funded by telecare provider Tunstall.

FACE reviewed a sample of 50 older people’s assessments and identified where telecare could have been used instead of other forms of care.

The savings figure was identified by running the revised assessments through FACE’s resource allocation system and comparing costs with and without telecare, which found package costs could be reduced by between 8.5% and 19%. Scaled up for an average local authority’s older people’s services, this translates into savings of between £3m and £7.8m a year.

The report said achieving the shift involved councils moving from considering telecare as an “add-on” activity to seeing it as a mainstream response to people, at the assessment stage. Currently, it said, “the emphasis remains strongly on either home care provision or the use of direct payments to employ a relative/friend to provide support”.

“Staff training is critical,” it added. ”Frontline staff need to be made more aware of the specific benefits of different telecare solutions. This includes guidance on both which telecare solutions are appropriate to particular needs; and on the needs profiles of the types of clients who will typically benefit most from telecare.”

Councils also needed to modify their assessment tools so that telecare was considered routinely at the assessment stage and care managers asked the right questions to identify the appropriate assistive technology.

It also called for a national outcomes monitoring system to test how well councils were doing in using telecare to make savings in their budgets, saying that currently provision of and outcomes from telecare were “somewhat of a postcode lottery”.

The report was launched at last week’s spring seminar held by the Association of Directors of Adult Social Services.

Related articles

How telecare can defuse chronic conditions timebomb

Government wants mass roll out of telecare services

Good practice in using telecare with older people

Article source: http://www.communitycare.co.uk/Articles/2012/04/23/118157/training-social-workers-to-spot-telecare-needs-will-cut-costs.html

Social care staff gain professional body to represent them

Social care workers in Wales will have a professional body to represent them with the announcement today of the launch of the Academy of Care Practitioners.

The academy, which will be formally launched at the Welsh assembly next month, is designed to raise the status of care staff and provide advice, support and representation, including through conferences, seminars, reports and annual awards schemes.

The launch of the academy follows a 12-month pilot scheme to test the concept. The academy has been developed by organisations including provider body Care Forum Wales and will be hosted by Glyndwr University.

“We talk a lot about raising the status and the professionalism of the social care workforce,” said Care Forum Wales chair Mario Kreft. ”One of the biggest issues in our view is that vocationally qualified social care workers are a profession without their own professional body. We believe it’s about time that was put right.

“Due to the nature of the demanding job, it’s unrealistic to expect the care practitioners themselves in Wales to be able to bring about the creation of their own body. It is time social care workers were given some assistance to make this a reality.”

He said the university’s hosting of the academy demonstrated that it was independent of employers.

Related articles

Care managers polled on working lives and support needs

Care home managers ‘must not be hidden behind office door’

Campaign to boost status of care service managers launched

Article source: http://www.communitycare.co.uk/Articles/2012/04/20/118156/social-care-staff-gain-professional-body-to-represent-them.html

Free upcoming Mencap events

Mencap are offering free information sessions on looking after someone with a Learning Disability when you are no longer around, to help with wills or setting up a trust.
A local solicitor with experience of wills and trusts will be prestsnt at all sessions, who will be able to answer any questions you may have.

 

 

Personal budgets boost for continuing care clients

People with continuing healthcare needs will have the right to request a personal health budget by April 2014, health secretary Andrew Lansley has told the Conservative Party conference.

The move would help personalise the NHS and further integrate health and social care, said Lansley. However, health commissioners would have the right to refuse requests.

About 53,000 people receive continuing care at a cost of £2bn a year to the NHS in England; it is given to people whose need for long-term care is primarily the result of a health condition.

Personal health budgets, under which people with long-term conditions are allocated money to fund their healthcare, are due to be rolled out from October 2012 after the current pilot phase.

In the past, people have lost their right to direct payments after becoming eligible for continuing care because of the bar on the NHS making cash payments.

This should come to an end for many  under the policy put forward today by Lansley.

“This is a solution that must come as part of a cultural shift for doctors, healthcare professionals, providers and patients which sees the patient as an equal partner in decisions about their care,” said Lansley.

The NHS Confederation welcomed the move but said the “cultural and practical barriers” to implementing personal health budgets had to be addressed.

“We need to address the fears of clinicians that it may be unethical to allow people to choose treatments and services with no evidence base yet these are exactly the things many patients want,” said chief executive Mike Farrar.

Help the Hospices and Alzheimer’s Society stressed the need for support services to be in place to help people manage personal health budgets to avoid over-burdening families.

“Managing a personal budget can be complex and time consuming, with patients and carers often having to research, negotiate and manage a variety of service providers,” said Jonathan Ellis, director of policy at Help the Hospices. ”For personal health budgets to work, support services need to be in place to help people, for whom time may be precious, to navigate the system and make sure they have access to the best possible care and support at the end of life.”

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Related articles

Social workers unconvinced by NHS personalisation

NHS cuts put pressure on social workers over assessments

Social workers unconvinced by NHS personalisation

Article source: http://www.communitycare.co.uk/Articles/2011/10/05/117552/personal-budgets-boost-for-continuing-care-clients.html